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The story of Anna

At Sobi, we are committed to supporting people living with paroxysmal nocturnal haemoglobinuria (PNH) – a rare blood disorder - throughout their lives.1

Living with PNH can be a challenge, but support, understanding and quality information may help people find unknown strength.2

Anna’s fictionalised story is inspired by a real person living with PNH. For Anna, there were days when a positive future felt out of reach. However, she said, “I was never alone. With the support of my doctors, friends, and family, I found an unknown strength and joy has returned to my life.”

  1. Dingli D, et al. The burden of illness in patients with paroxysmal nocturnal hemoglobinuria receiving treatment with the C5-inhibitors eculizumab or ravulizumab: results from a US patient survey. Ann Hematol. 2022;101(2):251–263.

  2. Everyday Health. 7 Ways to Manage the Emotional Aspects of Paroxysmal Nocturnal Hemoglobinuria. Available at: https://www.everydayhealth.com/paroxysmal-nocturnal-hemoglobinuria/ways-to-manage-the-emotional-aspects/