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The story of Paul

A diagnosis of Paroxysmal Nocturnal Haemoglobinuria (PNH) can change the lives of people after diagnosis.1

But, with information, understanding and support, people living with PNH can adapt and a can adapt and manage their condition better.2

Paul’s fictionalised story is inspired by a person living with PNH. After his diagnosis, Paul imagined his career dreams were over. But with the support of his healthcare team, friends and family, each day has taken him further away from the crisis of diagnosis and closer to a more balanced life.

  1. Panse J, et al The burden of illness of patients with paroxysmal nocturnal haemoglobinuria receiving C5 inhibitors in France, Germany and the United Kingdom: Patient-reported insights on symptoms and quality of life. European journal of haematology vol. 109,4 (2022): 351-363. doi:10.1111/ejh.13816

  2. Everyday Health. 7 Ways to Manage the Emotional Aspects of Paroxysmal Nocturnal Hemoglobinuria. Available at: https://www.everydayhealth.com/paroxysmal-nocturnal-hemoglobinuria/ways-to-manage-the-emotional-aspects/