Living with PNH
Supporting information to help you manage PNH
Paroxysmal nocturnal haemoglobinuria, or PNH, is a rare disease that may be associated with a range of symptoms.1
My-PNH.com was designed to offer you important information, advice and support with your daily life living with PNH.
Find out more about PNH support groups and strategies for managing PNH. Better Living with PNH
Advice on navigating work, family and everyday life with PNH
Talk about your PNH with confidence
Managing your physical and emotional wellbeing
My Voice My PNH Care booklet
You may find this informational booklet helpful in making the most of your care. Your family or friends can also benefit from the information in the brochure, as it may help them better understand your needs.
References:
1. Hill A, et al. Paroxysmal nocturnal haemoglobinuria. Nat Rev Dis Primers. 2017; 3:17028.