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Work, family and everyday life

Balancing work, family and everyday life with PNH

 

Balancing work, family and everyday life can be challenging when feeling well. Balancing these whilst trying to cope with the symptoms and emotions that may result from PNH can be quite difficult.

Support can come from different corners of life and can include family, friends, patient advocacy groups or external resources.

A support network may help you achieve your goals.

Better Living with PNH provides a holistic approach to managing life with the disease with support on yoga, nutrition, fitness and mindfulness.

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Identify what’s important to you

Assess your priorities and what can be realistically managed each day. Where possible, set realistic goals and save energy for the things that are most important for you.

Planning is key

Planning your daily workload ahead of time and setting realistic deadlines can help you avoid doing too much. It can help you to allocate your energy efficiently too.

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