PNH resources
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Useful PNH resources
A variety of resources are provided here to help you learn more about PNH and include practical tips in making the most of your care.
Patient advocacy and support groups
Patient advocacy and support groups offer a wealth of information and advice that you may find useful and they may be able to connect you with other people who are also living with PNH.
For more information about patient advocacy and a local patient support group in your country, please refer to the PNH Global Alliance. For medical advice please contact your doctor. For more information and support on managing your PNH from a holistic approach, Better Living with PNH offers a range of different materials on yoga, nutrition, fitness and mindfulness.
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